By Cheryl Mattingly
Grounded in intimate moments of kin existence out and in of hospitals, this ebook explores the wish that evokes us to aim to create lives worthy dwelling, even if no therapy is in sight. the anomaly of desire makes a speciality of a gaggle of African American households in a multicultural city setting, lots of them negative and them all with youngsters who've been clinically determined with critical continual health conditions. Cheryl Mattingly proposes a story phenomenology of perform as she explores case tales during this hugely readable learn. Depicting the multicultural city sanatorium as a border quarter the place race, category, and persistent affliction intersect, this theoretically cutting edge learn illuminates groups of care that span either sanatorium and family members and exhibits how desire is created as a regular fact amid attempting conditions.
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Extra info for The paradox of hope: journeys through a clinical borderland
Example text
A few have been part of the proj ect for only two or three years . While the federal funding has ended, to speak of this research in the past tense is a misnomer of sorts, for it is not really finished. We promised families that we would continue to have a yearly " family reunion " where we could all meet and catch up with what had been going on in our lives. In April 2 0 1 0 we held our first reunion. 26 I The Paradox o f Hope Many families came, some traveling from as far away as Las Vegas ( where they had relocated) to participate.
Hope, as many commentators have noted, has historically been a dominant theme in American life. In its simplest and most naive expres sion, Americans have long been associated with a national insistence on taking an optimistic stance toward the future. Every American is familiar with an American Dream that promotes an " against all odds " mentality and insists upon a " you can be anything you want to be" cheeriness. This cultural stance has been blamed (with good reason) for rampant individualism and a blind unwillingness to accept structural inequalities produced along class, race, gender, and ethnic lines.
Poverty plays an enormous role. For those on pu blic aid or without their own physician, emergency rooms are more often used for routine health problems. This means that patients are receiving care from clinicians who do not know them and in clinical situations where clinicians are likely to be harried and exhausted. Emergency room waits are infamous; patients and families are also likely to be frustrated by the time they actually get to see someone . Not, all in all, a promising circumstance for trust building.