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By Anne Grinyer

The past due results and long-term results of survivorship -- Case experiences -- The actual legacy and the terror of recurrence -- long-term keep on with up and the necessity for ongoing aid -- The emotional legacy : the way it adjustments philosophy and viewpoint -- Survivorship identification, the resistance to victimhood, and the confident results -- The impact on lifestyles plans and the longer term monetary impression -- The influence on fertility -- Implications for coverage and perform

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Extra resources for Life after cancer in adolescence and young adulthood : the experience of survivorship

Example text

But I realise that from the time Ruth was diagnosed and we were given this awful news … we were told, don’t get ahead of yourselves, there’s no guarantees. And then when she was in remission, we were told again, you can’t … you know there’s still a strong chance of recurrence. And that was the message that we were given constantly. Not just while she was on treatment but afterwards, and going back for scans, knowing what they were checking for … it was as if we’d never been told well you can begin to breathe more easily … it was the end of the protocol and suddenly there was nothing … just a cancelled appointment!

And of course my family as they’ve grown up, never knowing whether I’m going to be there on a morning or not, because often I was whipped off to hospital through the night. And you know, this is their … one of their recollections of their growing up, was where’s dad going to be tomorrow, you know. [There’s been a] huge, huge absolutely huge emotional impact – great uncertainty over us all … and for long periods in hospital in London when the family were up here, and the cost of that and the emotional separation and all the rest – quite a major thing … we are a close family.

So I think it’s just by explaining and giving time, and you know involving them fully in the whole thing. And it’s for others to judge whether we’ve done it well or not. Case studies 25 I’ve now come back into medicine with my amputation, because I had an insurance policy … a year after the amputation, when I was struggling to cope with the prosthetic – which I still struggle to cope with, I barely ever use it … they sent a nurse to the house who spent an hour with me, and she said we think you may be fit to return to work.

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